ABOUT USThe Institute of Human Genetics (IHG) began in 1990 as the Medical Genetics Unit of the University of the Philippines College of Medicine which in 1999 became as one of the service and research oriented institutes of the National Institutes of Health-University of the Philippines Manila (NIH-UP). Since then all services of the Medical Genetics Unit were transferred to the Institute and is now the largest provider of genetic services in the country. |
RARE DISEASE DAY
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The official global awareness-raising campaign for rare diseases, known as Rare Disease Day, is held on the final day of February every year. This campaign's main objective is to increase awareness among the general public and decision-makers about rare diseases and their influence on the lives of families living with these conditions. In the Philippines, the National Rare Disease Week (NDRW) was established in accordance with Presidential Proclamation 1989, which was signed in 2010. It highlights the issues facing the Filipinos affected by rare diseases. Locally, a disease is considered rare if it affects not more than 1 in every 20,000 individuals. Some of these diseases can be detected through the Philippine newborn screening panel. Rare diseases refer to life-threatening or chronically debilitating diseases, which are of such low prevalence that special combined efforts are needed to address them. Both celebrations hope to emphasize healthcare access and equitable opportunity.
February 22-28 - National Rare Disease Week
WATCH OFFICIAL 2024 Rare Desease Awareness Video VISIT and DOWNLOAD Global Materials VISIT the Official Local Facebook Page
#RareDiseaseDay #CareForRarePH |
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